Urban Vitality
Ms L.E. de Koning (Lisanne)
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Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs
Warnink-Kavelaars, J., Beelen, A., Goedhart, T. M. H. J., de Koning, L. E., Nollet, F., Alsem, M. W., Menke, L. A., & Engelbert, R. H. H. (2019). Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs. European journal of pediatrics, 178, 1883-1892. https://doi.org/10.1007%2Fs00431-019-03469-7
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Children and adolescents with Marfan Syndrome
de Koning, L., Warnink, J., Scheper, M., de Vries, J., Menke, L., Rombaut, L., & Engelbert, R. (2019). Children and adolescents with Marfan Syndrome: lessons learned from Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders regarding chronic pain and fatigue. Poster session presented at European Pediatric Physiotherapy Congress, Utrecht, Netherlands.